In addition to being diagnosed with an acoustic neuroma earlier this spring, I have had chronic kidney disease for 38 years.  I just got listed for transplant this month. I need to get the neuroma taken care of before they will transplant.

Are there any patients out there who have had a transplant (preferably kidney, but at this point, I'll talk to ANY transplantee)? I am particularly interested in hearing from people who had AN surgery in the year or so before transplant, but also interested in hearing from people who have gone through surgery post transplant.

Thank you.

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LeahJ
Newly diagnosed 2026.  Also listed for kidney transplant. Good thing I enjoy rollercoasters.

Hi Leah,

Great to see you here!  Hoping others chime in.  Also, try doing a "search" here as you may find info there as well.

Welcome!
Phyllis (from last week's Zoom discussion)

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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Still looking for anyone who has had a transplant or is facing transplant alongside the AN diagnosis...

Also trying to find an ANA Mentor, but having issues logging into the page to find the list.

Leah J

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LeahJ
Newly diagnosed 2026.  Also listed for kidney transplant. Good thing I enjoy rollercoasters.

Hi Leah,

Hello all! Care to chime in?

May be a challenge to find anyone that has endured any kind of transplant as well as deal with an AN.  Hoping someone responds here to help.

I can share that I have had to deal with other ailments (although not a transplant) while dealing with my AN.  Not unusual here to find others that tried to manage other issues while handling their AN situations.  Use the "search" option from the discussion forum home page to see historical inputs from others that have had to deal with multitude of issues along with their unique AN journey.  Just a thought.

Please reach out to the ANA office for the peer mentor list. I know many names on the list (besides myself) and definately a good resource to reach out to others.

hang in there!
Phyllis

Still looking for anyone who has had a transplant or is facing transplant alongside the AN diagnosis...

Also trying to find an ANA Mentor, but having issues logging into the page to find the list.

Leah J

Logged

"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"